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Leukaemia

Greece Writing : 409 days

Just arrived back from a weekend in Greece- I went for the 40 day commemorative service of my grandmother’s funeral. A sad but somewhat uplifting event. It was followed by traditional greek coffee and food with many friends and family members. As much as I don’t relate to formal religious practice, it was a very good send-off.

What have I been up to? Well Bridge has been very busy with teaching at Radley and a ‘demanding filming schedule’ (Stylish Holland Park, eh?) Since the last update, I have had my ear pierced (quite fun actually), been training, run another 10K, started weight training again, completed the Academy’s new studios and had a week of events launching them, won my first ever pub quiz, did my first post-cancer function gig (It was refreshing to do a wedding gig when there was no attention whatsoever to my cancer- people there didn’t know or care just any other treated-like-waitstaff musician. I give them 6 months, tops:)). I also wrote an exam for RAM which leads me to my next story:

I had to get 50 16-page exams printed for the monday morning exam.
It was late on a Saturday and I went to a shop that was just closing but said they could do it double-sided ‘no problem’ in the morning.

When I went in the morning, the assistant insisted that double-sided was impossible so after much faffing I said f*ck it single-sided then.
I came back to find that he was printing 46 page 1’s then on top of that 46 page 2’s. So i had to re-sort them all in the shitty shop which took over an hour of my time while he stapled them. VERY badly. When at last it got to the end, he said it would cost

Categories
Leukaemia

Up Jumped Spring : 1yr 25 days

I love the Spring. When it finally breaks it is never a disappointment and I feel just as good as a kid on the last day of term. Still it took its f&*^ng time.

Been really busy, since the last post: Bridge and I recorded a classical guitar piece at the Academy Studios, I’ve written a new ‘cello piece and had it performed by Nick Allen at the London College of Music, put in 4 funding applications for my work, rehearsed and performed 45 minutes of music for Bridget’s band at the South Bank (check out the pictures ) Rehearsed and performed with a 60-piece orchestra for the MAAM concert at the academy, been interviewed by the BBC for their website, worked on the Academy’s studios and been training for the 10K. Not enough time!

Bridge has been chosen to appear in a 7-series BBC programme in the capacity of the ‘Guitar Expert’. Her job is to be filmed teaching a tv ‘personality’ over 20 weeks in preparation for a big performance. Filming starts Friday… More as it unfolds. FYB, milt x

Categories
Leukaemia

Pick em up : Day +374

Sophie & Floyd showed up in a women’s mag called ‘Pick Me Up’ So I took the mag’s advice and did, here’s the article. Good on them- they are wonderful people! When she read it, Bridget cried into her cappuccino in StarBucks:) More later…. milt

Categories
Leukaemia

News : Day +373

Sad to report the passing of my maternal grandmother, Ismene. She was an amazing woman and will be very fondly remembered. Farewell, Nana.

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Leukaemia

Gigs: Day +373

If anyone would like to come and hear me play a couple of nice (but free) gigs. 26th April Universiy of Surrey- Electric guitar and electronics improvised concert and May 1 Southbank Centre, Purcell Room Foyer 4pm, Bridget’s band (plus me + bass and drums) -lovely pop, country bluesy vocal tunes with words that mean something and no endless jazz solos. lol. Love to see you there!

Categories
Leukaemia

Legs : Day +373

Except for having to deal with a recent infection I have kept up the training, runing 3 short distances 4-5k and 1 long distance (7-10k) a week. I’d like to say its getting easier, but it is still a bit of an uphill battle. Am not complaining though, it is an enormous privilege to be able to move at all anytime after November 2004. And with a current sponsorship of

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Leukaemia

Words : Day +373

The MiltChat forum & guestbook is hotting up with more than 40 wonderful people now sharing their experiences. Survivors, battlers, family and friends, you are all very welcome.

FYB, Milt

Categories
Leukaemia

Definite Article : Day +366

The Evening Standard (First edition) ran a full page article about me on page 47- It is really well written I think. I have an electronic version here in case you missed it. Milt 🙂

“A slight, emotional figure” – Evening Standard. lol!

Categories
Leukaemia

ReBirthday Presence : Day +365

The Leukaemia Conference in York was fantastic, full report coming up. In the meantime i just want to express my gratitude for surviving one year after my Bone Marrow Transplant. To honour those many who have gone before and pave a way for those that follow, I will do all I can to live my life to the full and make it one year more. milt x

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Leukaemia

Hi Bridge : Day +365

Bridge has a new site! Please check it out and warm up her guestbook with a friendly hello:)

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Leukaemia

Lo Standard : Day +365

I am told that there will be an article on me in the Evening Standard tomorrow (Monday 10th April) on page 45 or 47. Haven’t seen it yet, so don’t know what to expect! Will scan a copy in case anyone interested misses it…It’s all lies I tell you lies!(Unless I come out good)

cheerio, milt 🙂

Categories
Leukaemia

Forum For Umm..: Day +362

Off to the Leukaemia Research Annual Conference 2006 in the beautiful city of York tomorrow. Serendipitously, It will concide with my “re-birthday” on Saturday April 8th- Please nobody bother with a bone marrow cake, “Don Peridone” or chemo cocktails. Very grateful to have made it this far relatively intact-hope I am living up to the privilege of being alive- I will endeavour to do my best always. FYB, milt

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Leukaemia

Target Destroyed : Day +361

The Fundraising Target of

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Leukaemia

Listen : Day +358

NEW PODCAST EPISODE! LISTEN TO MILTONAIR HERE

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Leukaemia

Allan : Day +350

Very sad to report that Allan Miskell (Ontario, Canada) passed away on March 22nd at the age of 22 following a relapse of Acute Lymphoblastic Leukaemia. Allan was a talented & busy percussionist and drummer and much loved (& sorely missed) by his family (Suzanne. Michael & Sara), best friend Caitlin and a huge community. I encourage you to pay tribute HERE(write a condolence and/or donate to Leukeamia Research Fund, Canada) Allan’s mother Suzanne has offered great support to me over the past months and I want to express my deep sympathy. Please join me. Milt x

Allan Miskell

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Leukaemia

Sponsor Monster: Day +348

You guys humble me. What amazing support for my run. Thanks. I have upped the target dramatically to 10k for the 10k. One British pound to one British meter. Just want to thank you all again. To be honest, when these generous amounts came rolling in I was rather embarrassed and felt like hiding. But Bridget said the immortal line: “Oh, Just take the money and run.” Genius.

Categories
Leukaemia

Cheque Mates : Day +348

Visited CancerBACUP HQ near Old Street, London. Shown around the offices by the hospitable Danielle Larner and Jane Murphy. Lovely people working hard to keep a good thing going (Advocacy/Informational/Support to those affected by cancer).

Presented a cheque for

Categories
Leukaemia

Milt Forum: Day +348

Over the last few months I have had an overwhelming amount of SPAM (Can I just announce to the whole world that I do NOT, I repeat do NOT need VIAGRA, CIALIS or other prescription medications. I earned myself TWO university degrees and am not in the market for buying anothe- Don’t give me the third degree man. I am also extremely happy with my ‘size’ and I am, as it happens, not interested in transferring $23,000,000 from a Nigerian bank – not even for a 2% cut for my trouble.

For this reason I have just uploaded a lovely new guestbook and forum(oooh) http://miltnet.com/miltchat Why don’t you be the first to post? Please help me make it a groovy happening, positive, helpful forum – wouldn’t that be great?

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Leukaemia

Milt-on-air: Day +347

Been toying with the idea of doing miltlatest via PodCast, so those hard-of-reading folks who would rather hear my updates/music may do so and the lucky Ipod-ly ones could get automatic updates and carry them around their persons. Sounds interesting, maybe? So I (and my guitar, and monkey) did a short little technical test of it here.(Click on ‘listen’ under Podcast test, then hit play under the x-ray pic of my lungs)

Please let me know whether it worked or not (could you ‘subscribe’ to it? Did it appear in Itunes?) So do you think MiltOnAir is an idea with ‘wings’? Or is it the Icarus of podcasts??? Cheers, milt

Categories
Leukaemia

Racing Ahead: Day +346

Okay, a little overwhelmed by the response to my sponsorship request. I was hoping for over

Categories
Leukaemia

Run for my Life : Day +343

Okay, as you may know I am doing a 10k charity run on 28th May 2006 in Regent’s Park for the marvellous CancerBACUP If you feel like sponsoring, may you live to be a thousand with the body of a 20 year old, a host of lovers and the latest Apple Mac- click here If you are unsure then please remember a couple of things.

1) It is less than a year since starting my Bone Marrow Transplant
2) I received the most intense amount of treatment a patient is expected to have in their lifetime

3) Ignoring points 1) & 2), when it comes to running, I am, well…shit.

so SPONSOR ME!!!

Categories
Leukaemia

The Bone Marrow Times: Day +343

8-year old Daniel Kerkhoff received his stem cell transplant yesterday. So far, so good. Wishing him the best. Wanna help?

23-year old Jessica Mason (ALL(phase 2 end) Unrelated bone marrow match recently found has started her own blog of her great writing. Be a chum!

Categories
Poetry

Underground Lines 2 : Day +343

Bond Street-Holland Park: Male early 20’s in white leather jacket with a Vespa badge and a ‘USA’ Cap.

Heeeeeeey, I’m…….

Vespa Man! Vespa Man!
Taking those corners as fast as I can.
Vespa Man! Vespa Man!

Don’t call it a lotion, it’s a tropical tan.

Rip in my jeans in a place just right,
You can’t take ME down in a fight.
Badges on white leather,
Cream baseball cap,

Nano-slick with the ladies,
Now THAT is a fact.

Vespa Man’s TOP!
Vespa Man’s COOL!
Vespa Man’s HOT!
Vespa Man!

Fool.

Categories
Leukaemia

Paper Moon : Day +340

Hello everybody, been back at work this work. A little fatigued, am still learning to balance my enthusiam for life with my current physical limitation. I am so clear about how I want to live, what creative projects I aspire to and what is good and worthwile in my life. But although its almost a year on from Bone Marrow Transplant, my body can’t easily forget that complete bollocking abuse it has received. Still I have many, many things for which to be grateful and I am not interested in moaning. Let’s just get on with it!:)

I was interviewed by the Evening Standard today, as they are interested in writing a story on me, looks like it may go ahead. The journalist, Rory Clements is very intelligent and sharp so am looking forward to see what he comes up with. I’ll keep you posted if and when it goes to print.

8^P MiltSpotting : Day +340

Check out the pictures page for some milton spottings around the globe.

First of all from 8-year old Daniel Kerkhoff (who is now in hospital readying for his BMT) Notice how he unearthed an ancient effigy of me on a can. Astonishing. There is also a picture of Allan Miskell spotting a dramatic mention of my name. Do the signs never stop? If you have any further evidece of further milt/milton symbols appearing worldwide, please let me know! I’ll start a cult or something.

Please let us spare a thought for these two brave young men. Daniel has been battling Leukaemia for 4 years (really not fair on a child-nice one loving & just god) and is receiving his Bone Marrow Transplant on March 19th. Let us also think of Allan who is having a really rough time in hospital since his recent leukamic relapse. Keep fighting, lads.

Categories
Poetry

Underground lines : Day +340

Hello again. I invented a new pastime today designed for tube journeys. For every person that sits opposite you, write a quick poem, not a twee limerick. But an honest, stream-of-consciousnees reaction to that person that you will probably never see again. Just a reflection on two lives momentarily crossing. Don’t try to be clever or force anything, just let it flow out. I include my efforts for today. I believe they have the veneer of respectable poetic lyricism but also know they are basically crap and I don’t really know what they mean. However I found it intriguing what emerged. Please guestbook in your creations:) Till the next time, follow your bliss. milt 🙂

Euston-Oxford Circus: Elderly Gentleman with Hat (70+)

So this is life, so coloured/so dull.
Into hollow’d meaning my senses lull,

Over? Is it now?
Only the clucking bell,
and menac’d sea can tell.

Oxford Circus- Stuck Train: Gay Fashion Student (22ish) and Female Friend.

Plaid. Fancy.
Though he ekes a familiar fag-hag smile we must ask,

Does gay & happy make a happy gay?
Lay swatch over swatch and compare to your father’s twisted disapproval,
Now with matching bald head glistening in desperate ease.
Make your dress, my friend. I wish you well.

Marble Arch to Notting Hill gate: Stern Japanese Lady (38ish)-

Ice.
A billion year curse places us in this knotted web.
I fold like Origami.
You continue to stare, unmoved.

Notting Hill Gate-Shepherd’s Bush:

Giggly Arabic Teenage girl gossiping inanely with her taller, thinner friend

Izzit. Innit.
Innit. Izzit.
Izzit? Innit?
Izzit? –

No.

It is Not.

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